tapiocapuddin

On Monday, Emily was taken off the ventilator. She has some periods of apnea, but her saturation levels are good and is breathing fairly well on her own. It was so great to see most of her face again. She only has the feeding tube through her nose now. PT & OT (Physical & Occupational Therapy) are coming daily to work with her. She has not been vertical in almost 3 months. She has to be supported in every way to move. Although she tries at times, she cannot speak. It's possible she does not know how to speak. We will learn more about that in time. Her voice sounds hoarse.

Last night around midnight [10/26], she was moved to a regular room just outside the PICU. The ICU received many critical patients last night and she had to be moved out (good news/bad news). She is still under the care of the ICU, but not directly in the unit. ... She has shown improvement in the last two days, however, today she struggled a lot with pain and withdrawals. As they continue weaning meds, they also talk of sending her to HealthBridge Children's Hospital...for her rehabilitation. Not sure of when she will go. She is on a waiting list for a bed. ... Thank you again for your prayers. We don't say these words lightly.

Love,
Ken & Natalie

EDIT: Emily was taken back to ICU [10/27] because she keeps holding her breath and setting off the monitor alarms.

Labels: Prayer Requests